Support Services Directory

Patient Support Services Guide 2018

Foundations and Nonprofit Organizations

American Breast Cancer Foundation
The American Breast Cancer Foundation provides direct financial assistance to uninsured and underserved women and men of all ages for breast cancer screening and diagnostic tests through the Breast Cancer Assistance Program, Community Partnership Program, and the Community Advocacy Program.
American Cancer Society
The American Cancer Society has programs and services to help patients with cancer and their loved ones understand cancer, manage their lives through treatment and recovery, and identify resources for financial assistance.
American Childhood Cancer Organization
The American Childhood Cancer Organization provides programs, information, and awareness for children and adolescents with cancer and their families, to advocate for their needs, and to support research so every child survives and leads a long and healthy life.
The Assistance Fund
The Assistance Fund (TAF) is an independent charitable patient assistance foundation that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses. TAF currently manages more than 30 funds—each of which covers the FDA-approved medications that treat a specific disease, such as melanoma, breast cancer, head and neck cancer, lung cancer, and others, depending on funds available. Since its founding in 2009, TAF has helped more than 43,000 adults and children access the medicines they need to stay healthy or manage a chronic condition.
Avon Foundation for Women
The Avon Foundation for Women, through the Avon Breast Health Outreach Program, links medically underserved women to breast health education and screening services. The foundation provides targeted, customized approaches to help low-income, underinsured, and other marginalized populations obtain regular mammograms and clinical breast exams.
Be the Match Patient Assistance Programs
These programs provide financial assistance for patients with multiple myeloma or lymphoma who need an unrelated donor for a bone marrow or cord blood transplant. The funds pay for costs (including copays) not covered by insurance that may accumulate while searching for a donor and for 12 months after the transplant. Financial aid recipients must meet certain financial eligibility criteria.
The Bone Marrow Foundation
This foundation offers 2 financial assistance programs for patients with leukemia, lymphoma, or multiple myeloma who need a bone marrow transplant. The foundation’s Lifeline Fund covers costs associated with a transplant, including copays, medical treatment, and a variety of living and travel expenses, and the Scholarship Fund assists students who have undergone a transplant, are enrolled or enrolling in a primary, secondary, or college-level school, and whose annual household income is less than $55,000. Funding helps cover tuition, supplies, and educational homebound equipment.
CancerCare is a national nonprofit organization that provides free professional support services to patients with cancer and their caregivers. CancerCare programs, which include counseling, education, financial and copayment assistance, and practical help, are provided by trained oncology social workers. CancerCare’s financial assistance programs provide limited financial assistance for cancer-related costs. The CancerCare Co-Payment Assistance Foundation helps patients afford insurance copayments for chemotherapy and targeted treatments.
CancerCare Co-Payment Assistance Foundation
The CancerCare Co-Payment Assistance Foundation provides financial assistance for patients with breast, brain, lung, multiple myeloma, or thyroid cancer. This foundation helps with insurance copayments to cover the cost of chemotherapy and targeted drugs associated with various cancers. Eligible patients must be undergoing chemotherapy or be prescribed a targeted drug; be covered by private insurance, by an employer health plan, or by Medicare Part B, C, or D; and have an adjusted gross income of up to 4 times the federal poverty level.
Cancer Financial Assistance Coalition
The Cancer Financial Assistance Coalition is a group of national organizations that provide financial help to patients with cancer. The Cancer Financial Assistance Coalition provides a searchable database of financial resources available to patients in need.
Cancer Support Community
The Cancer Support Community is an international nonprofit organization that is dedicated to providing support, education, and hope to individuals affected by cancer. The Cancer Support Community offers a menu of personalized services and education. These support services are available through a network of professionally led, community-based centers, hospitals, community oncology practices, and online resources.
Emilio Nares Foundation
Through its numerous, dependable services, the Emilio Nares Foundation helps direct families through their child’s journey with cancer, and supports each child’s recovery. Services offered by the Emilio Nares Foundation include financial aid, access to information and trained staff members in the resource center, and the foundation’s flagship program, Ride With Emilio, which offers underprivileged children and their parents transportation assistance in getting to and from the hospital for cancer-related appointments.
Good Days
Good Days is a nonprofit organization that provides assistance to underinsured patients who are diagnosed with chronic or life-altering diseases (including cancer) so that they get access to the medications they need.
Headstrong Foundation
This foundation provides financial assistance for patients with leukemia, lymphoma, or multiple myeloma. Patients who are experiencing financial hardship and are undergoing treatment for leukemia at the time of application are eligible to receive a grant for up to $750, to help offset living expenses, and travel-related expenses resulting from disease and/or medical expenses.
Healthwell Foundation
The HealthWell Foundation is an independent, nonprofit organization that provides financial assistance to eligible individuals to cover coinsurance, copayments, insurance premiums, deductibles, and out-of-pocket expenses for certain medications and therapies.
Leukemia & Lymphoma Society
The Leukemia & Lymphoma Society’s patient financial support program provides limited financial assistance (such as financial support toward treatment-related copayments, insurance premium costs, and certain Medicaid and Medicare costs) to patients diagnosed with a blood cancer (eg, leukemia or lymphoma) and with significant financial needs to help defray treatment-related expenses.
National Children’s Cancer Society
The National Children’s Cancer Society seeks to improve the quality of life for children with cancer, their families, and survivors by providing financial and in-kind assistance, advocacy, support services, and education.
National Foundation for Transplants
The National Foundation for Transplants provides fundraising assistance for patients needing organ and/or tissue transplants, including bone marrow and stem-cell transplants.
National Organization for Rare Disorders
The National Organization for Rare Disorders is a federation of patient organizations that are dedicated to helping patients with rare diseases and assisting the organizations that serve them. The National Organization for Rare Disorders is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
NeedyMeds, a national 501(c)(3) nonprofit organization, is an information resource on available patient assistance programs that help individuals who cannot afford medications or other healthcare costs.
Partnership for Prescription Assistance
The Partnership for Prescription Assistance helps qualifying patients without prescription drug coverage get the medication they need by connecting them to patient assistance programs. This organization offers access to more than 475 public and private programs, including 200 biopharmaceutical company programs.
Patient Access Network Foundation
The Patient Access Network Foundation provides advocacy and financial support for out-of-pocket costs associated with a wide range of medications to treat a number of chronic, rare, or life-threatening conditions, including cancer.
Patient Advocate Foundation Co-Pay Relief Program
The Patient Advocate Foundation Co-Pay Relief Program provides direct financial support to financially and medically eligible patients, including Medicare Part D beneficiaries. These may include out-of-pocket costs associated with healthcare insurance copayments, coinsurance, and deductibles.
Patient Services, Inc
Patient Services, Inc, is a nonprofit organization dedicated to providing health insurance premium assistance, pharmacy copayment assistance, and copayment waiver assistance for patients with chronic illnesses, including cancer.
RxAssist, through their online Patient Assistance Program Center, provides a comprehensive database of patient assistance programs offered by pharmaceutical companies, as well as other tools and resources to manage their medication costs.
RxHope is a web-based patient assistance resource that helps patients obtain free or low-cost prescription medications. RxHope has program descriptions and downloadable applications for prescription assistance programs for specific medications.
Rx Outreach
Rx Outreach is a nonprofit pharmacy that provides access to affordable medications. Rx Outreach offers more than 600 medications through its mail-order pharmacy to all 50 states, Puerto Rico, and the Virgin Islands.

Government Assistance Programs

National Council on Aging
BenefitsCheckUp helps individuals aged >55 years find support programs that may cover some of their prescription drug costs and other healthcare expenses.
Compassionate Allowances
Social Security Administration
Social Security provides benefits to patients with serious medical conditions that meet disability standards. Compassionate Allowances is a means for Social Security to quickly identify medical conditions that qualify for benefits under the Listing of Impairments based on minimal objective medical information and target them for allowances.
Extra Help
Social Security Administration
Extra Help is a Social Security program that provides financial assistance to eligible Medicare beneficiaries with their Medicare prescription drug plan costs, such as monthly premiums, annual deductibles, and prescription copays. Extra Help is estimated to be worth about $4000 annually. To be eligible for Extra Help, an individual must receive Medicare, have limited resources and income, and reside in 1 of the 50 states or in the District of Columbia.
Genetic and Rare Diseases Information Center
Office of Rare Diseases Research, National Institutes of Health
The National Institutes of Health (NIH)’s Office of Rare Diseases Research maintains an online resource that provides links to several support services, including support and advocacy organizations, financial aid for medical treatment, travel and lodging assistance, and fee-for-service ambulance services.
Hill-Burton Free and Reduced-Cost Health Care
Health Resources & Services Administration
800-492-0359 in Maryland
As mandated by the Hill-Burton Act, about 140 healthcare facilities nationwide participate in this service to provide free or reduced-cost care for patients who are unable to pay for their care, and to make their services available to all persons residing in the facility’s area. Patients are eligible to apply for Hill-Burton free care if their income is at or below the current Health & Human Services (HHS) Poverty Guidelines, and for reduced-cost care if income is ≤2 times the HHS Poverty Guidelines.
National Cancer Institute: Organizations That Offer Support Services
The NIH maintains a database of government agencies and national organizations that provide financial assistance to patients with cancer and their families. In addition, it provides information about patient assistance programs.
National Council on Patient Information and Education: Understanding Prescription Assistance Programs
The National Council on Patient Information and Education is a nonprofit multistakeholder coalition that is involved in communicating information on prescription assistance programs to consumers and healthcare professionals.